(Note: This anthology is coming in 2017.)
It’s a word that most people have never heard. There’s a good chance that whoever is reading this right now, has no idea what it is. Cystinosis is a rare genetic, metabolic condition. Not many people have this condition but it has touched more lives than one might think. The ones who have this condition, their family, their friends, the doctors who treat them. It’s affects are not intangible.
In this collection you will find pieces written by the people who have been affected by Cystinosis in one way or another. Whether stories from people with Cystinosis, a parent, sibling, friend, grandparent, guardian, these people have all had their lives touched by Cystinosis.
This collection will explore all sides of this. The negative, the positive, the hardships, the joys, the obstacles, the successes. All of the wonders of living with and loving someone with Cystinosis.
You don’t need to have Cystinosis to appreciate this collection. You don’t even have to know someone who does. These true stories are meant for everyone. Everyone who has ever experienced the great pains and joys of life. We hope that this book will shed light on a rare and little known condition and touch your life just as Cystinosis has touched ours.
All proceeds from this book donated to Cystinosis research. Tentatively slated for release in 2016.