It’s a word that most people have never heard. There’s a good chance that whoever is reading this right now, has no idea what it is. Cystinosis is a rare genetic, metabolic condition. Not many people have this condition but it has touched more lives than one might think. The ones who have this condition, their family, their friends, the doctors who treat them. Its affects are not intangible.
In this collection you will find pieces written by the people who have been affected by Cystinosis in one way or another. You don’t need to have Cystinosis to appreciate this collection. You don’t even have to know someone who does. These true stories are meant for everyone. Everyone who has ever experienced the great pains and joys of life. We hope that this book will shed light on a rare and little known condition and touch your life just as Cystinosis has touched ours.
All proceeds donated to the Cystinosis Research Network. Tentatively slated for release in July 2017.